Jagger was ok overnight without oxygen. He was very agitated and
did not sleep until 4 am but his breathing was good and his stats were normal.
We talked to the Dr. Ka (ICU doc) this morning, RSV and flu tests came back negative however he still think it was some kind of illness
as Jagger got better quickly on antibiotic, steroid and IV fluid.
Dr. K (our neuro) stopped by this afternoon and he also
think it was a bug and not the disease progressing in the brain stem (which is a
great news!). We cannot be sure 100% without an MRI but if it was his disease
he would have not gotten better on fluid and antibiotics. However as it is the cause with mito kids,
Jagger will probably not get back to his pre illness (last week) baseline.
One of the bad things about the disease is that each time
Jagger have a " Mito crash" such as this respiratory illness he just
had, he never get back as "healthy" as he was before and end up a
little weaker each time he gets sick :(
We were also warned that if we have to
intubate him for any reasons( surgery, etc) it is very likely that we could not
take him off the ventilator since his breathing is now weaker.
It was kind of expected news but it does reduce our
options in case of major crisis.
After an exhausting 3 days in the ICU it's nice to be
home!
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| Sleeping in the ICU |
He is precious. You all are in my prayers. I heard about your blog and Jagger from your Facebook friend Stephanie H. M.
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