Sunday, September 9, 2012

Temporary insanity and Mickey Mouse

So this year we decided to do Mickey theme for Jaggy's birthday. (last year was cars). I already looked around and am able to find Mickey balloons, plates tablecloth etc.

Well apparently that was not enough. We are on our way to Orlando to have breakfast with Mickey:)

Sebastien has to be in Orlando for several days this week. Our nanny was sick and is now out all next week due to a family emergency. Jagger was pretty bad last week when daddy was gone and he (Sebastien) was already stressing out about being gone again so I proposed we all go.

Oh boy what were we thinking. We are used to traveling and also traveling on a whim/last minute. Except traveling with a medically complex child is difficult and now add less than 24 hour prep time. Well that could be considered insanity.

So around 4 pm yesterday/ Saturday we decided to all go Orlando. So we spent the rest of the afternoon and night packing and doing laundry. Thankfully Jaggy was pretty content; probably because daddy kept singing to him that we are driving to go see Mickey;)

We left our house at 2 pm Sunday afternoon. 2 hours behind schedule but it could have been worse.

I am very impressed with us/ mostly myself for having organized and packed all his medical equipment and supplies, his special formula, cooler full of Meds, his clothes ( had to take ton extra in case he pees or vomits); spent some time on the phone with supply company to figure out what to do with oxygen, made food for the road etc. I am even more impressed I was able to fit all our/ Jaggy's stuff in the car using every inch available while not blocking rear view mirror. Aside from his medical equipment we also took his humongous stroller which thankfully comes apart and two oxygen tanks ( no time to get portable oxygen concentrator).

So Mickey here we come.




2 comments:

  1. Cool post pics of Jaggy and Mickey can't wait to see.

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  2. I'm so glad to hear that Jaggy handled the long car ride well! We can't wait to see the pictures of Jaggy with Mickey!

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