Useful or interesting links
United Mitochondrial Disease Foundation,. A lot of info about the disease and resources, great site
Foundation for Mitochondrial Medecine, about research and trying to find a cure
This pamphlet is a great introduction to mito disease and basic genetics
Another great resource is the book called "Living well with mitochondrial disease" by Cristy Balcells. The book is available on amazon.
Tiny sparrow Foundation. Awesome non profit organization that creates lasting images of loved ones who are terminally ill.